The N.Y. Times
ran a remarkable story
last Sunday describing the life changes that occur when a person chooses to learn whether she has the genetic condition -- Huntington's Disease
(or HD) -- that killed her grandfather and afflicts her cousin. Is it a good idea to find out, or is it an invitation for sorrow, stigmatization, and loss of insurability? The issues are explored sensitively and in detail in this article, which I didn't see last Sunday as I prepared for and gave a talk to The Institute for the Humanities at Salado
on, of all things, medical privacy and the uses to which genetic information may be put. Thanks to college classmate Rick Goggans, M.D., for pointing this one out to me!
Links to HD resources (provided by The Times):